Little personal update

I have been offline for a bit now and unsure about how to talk about it.

Things have been busy around here.

About ten days ago my dear daughter, the mother of my three grandchildren, was diagnosed with a very rare neurological disease with an indeterminate recovery and the potential of some progression. This has affected her mobility and energy levels drastically. Her medical care has been outstanding, no issues there, but this has been a big event in our lives.

This is tough, but then again so are we. I have confidence in that, in her care team, in her resilience, in this family's ability to deal, and in life.

The fact too is that one of the benefits of being my age is that by this point you sort of know things happen and that you can all get through it.

My role has been the grandmother stuff, taking care of the kids, making food, whatever I can see needs to be done and I can do. And I am far from the only one.

My niece said it best. My daughter has an army behind her.

In those times when I was home alone in the house with the kids waiting to hear news from some test I found myself going down to my sewing room and refolding my fabric. It was very soothing. It sort of reminded me of who I was, who we are. It reminded me of where I have come from to this day, of the clothes I made for her when she was a little girl, of an ordinary life that doesn't seem that close to us right now.

Sewing has also given me something to do when there was nothing I could do.

I made her a lucky shirt with bright flowers on it to wear to an important MRI. 

When she said that new clothes are always cheer anyone up I started sewing.

I made a soft Adeline dress yesterday and have another one cut out to go. I may loosen the hem on this one so it is a little less restrictive. I have a couple of pairs of Jalie pull-on pants cut out. And another lucky shirt. When she can my daughter says she will have pictures taken for the blog. But right now I am sewing away on a little island in front of my machines at something I have always done my whole life.

I feel we are battening down the hatches around here right now seeing where this thing goes, but that we will adapt and be fine. Once we have an idea what the new normal looks like we will live it. Of those who have this particular condition many, of not most, have it much worse at onset. We are hopeful for the rest of our news to be good news and for Katrina to be one of the ones who experience considerable recovery.

So that's my status report, down folks, but most definitely not out.

Now off to get some kids off to school.